Supportive Care

Chairs

Maya Prasad

Professor, Paediatric Oncology

Tata Memorial Centre, Mumbai

Vasudha Rao

Consultant - Paediatric Oncology

Rainbow Children’s Hospital, Bangalore

Goal Statement

To provide timely and standardized optimal multidisciplinary supportive care in children undergoing treatment for cancer

Key Focus Areas

  • To develop consensus recommendations for nutrition assessment and management.
  • Optimize and standardize management of fever and febrile neutropenia - Template for febrile neutropenia management, Fever Registry, Quality Improvement initiative, Fever Card.
  • To conduct and help implement Infection Prevention and Control Training.
  • To formulate a position statement on safe and evidence-based blood and blood product transfusion practices.
  • Implement infection control bundles/ WHO Hand Hygiene - Infection prevention and Control Manual.
  • Implement and test Paediatric Early Warning Scores (PEWS).
  • Develop national guideline for procedures and procedural analgesia and sedation .
  • Dietician/ Nutritionist in all pediatric cancer centre.
  • Develop database which captures baseline and longitudinal data.
  • Make nutritional supplements accessible.

Three subcommittees have been formed under this task force

  • Infection Control/ Febrile Neutropenia – 38 members.
  • Nutrition – 26 members.
  • Blood transfusion and Support – 31 members.

Glimpses of Work

Context

Malnutrition remains a major challenge in pediatric oncology care, significantly affecting treatment tolerance, outcomes, and survival rates. Studies indicate that 50–70% of children with cancer in India experience some form of malnutrition, which is associated with higher treatment-related toxicity. Furthermore, parents often lack access to regular, comprehensive guidance on nutritional care during treatment.

Purpose

ICCI aims to develop consensus recommendations for nutrition assessment and management in children with cancer, in order to reduce the burden of malnutrition-related complications and improve survival outcomes by standardizing nutritional care practices in alignment with the World Health Organization (WHO) Global Initiative for Childhood Cancer framework.

What We Have Done
  • The first draft of the recommendations is currently under review by internal and external experts.
  • The document will be partly released at PHOCON in November 2025. There will be an in-person /virtual meeting in December 2025 to review, finalize, and approve the document for publication and dissemination.
Next Steps
  • Finalize the nutrition assessment and management recommendationsbased on expert inputs and feedback.
  • Publish and disseminate the recommendations to pediatric oncology centers across India.
  • Conduct training and orientation sessions for healthcare professionals to ensure effective implementation and promote standardized nutritional care for children with cancer.

Context

During the ICCI Supportive Care taskforce meeting held in July 2023, members identified an urgent need for practical tools to improve the early recognition and timely management of fever among children with cancer, a critical component of supportive care.

Purpose

To develop an easy-to-use, patient-friendly resource that empowers families and healthcare providers to take timely and appropriate action during fever emergencies, thereby reducing treatment-related complications.

What We Have Done

An Emergency Fever Card has been developed to guide patients, caregivers, and healthcare providers in managing fever episodes. The draft card was circulated among experts, and 33 responses were received. Feedback and recommendations were carefully reviewed and incorporated into the final design to ensure clarity and effectiveness.

Next Steps

The finalized Fever Card will be shared with hospitals for distribution to patients and caregivers, enabling prompt response to fever episodes and improving supportive care outcomes. The card will be shared in an editable format to enable customization for centres.

Context & Purpose

Infection prevention and control (IPC) is a critical component of pediatric oncology care, as infections remain one of the leading causes of morbidity and mortality among children undergoing cancer treatment. To strengthen infection control practices across Indian pediatric oncology centre institutions, a collaborative effort was initiated between the ICCI Supportive Care Taskforce and the St. Jude Global Infectious Disease Program (GIDP).

Purpose

The initiative aimed to improve infection prevention and control practices in Pediatric Oncology Units (POUs) through a Training of Trainers (ToT) model. The objectives were to help build institutional capacity by equipping healthcare providers with essential IPC skills, hand hygiene, safe vascular access, standard and transmission-based precautions, and blood cultures and antimicrobial susceptibility (IPC Essentials) and to enable replication of this training within the institutions of the workshop participants.

Conducted the Pediatric Cancer Registry Data Meeting and CRC Workshop (January 31–February 1, 2025) in Chennai, attended by over 150 delegates, including 18 CRCs and 8 faculty members. (Attached)

What We Have Done

A three day IPC Essentials Training Workshop was conducted from 11th to 13th September 2025 at Tata Medical Center, Kolkata. The workshop was attended by 53 participants representing multiple institutions across several Indian states, including pediatric oncologists, general pediatricians, nurses (IPC and oncology), and other healthcare workers.

Key activities included
  • Reviewing the IPC Essentials educational needs assessment survey.
  • Evaluating training materials, lectures, and interactive sessions to build a comprehensive educational curriculum.
  • Discussing the Theory of Change as a framework for implementing IPC training at institutional levels.
  • Reviewing results from the Hand Hygiene Self-Assessment Framework (HHSAF) survey.
  • Conducting interactive sessions to strengthen participants’ capacity as trainers and educational leaders.
Next Steps
  • Participants will replicate the IPC Essentials training within their respective POUs.
  • The ICCI-GIDP Working Group will continue engagement with trained institutions to support implementation and monitor outcomes, as well as to develop systematic learning modules on the Cure4Kids website for further training.
  • Future efforts will include developing institution-specific IPC action plans, strengthening follow-up assessments, and expanding the IPC Essentials Training Program to additional ICCI centers across India.
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